Run -- don't walk -- RUN from anyone who claims to have THE answer or THE cure for auitsm.
I am Mom to 5 children, three of my kids are on the autism spectrum.
My youngest two, twins, were thought to
never be able to be independent or talk. That was when they were
about 3 years old. I was told by a behaviorist when they were
about age 4 that my dreams for them to read and to live independently
someday was "pie in the sky" and that I needed to "get real" about my
expectations for them.
Hog wash.
I am not wealthy. My husband is a
pastor. I have home schooled my kids for 16 years, and then 4
years ago, I started a school because I knew there was a need for kids
with special needs to go to a school that focused on the kids'
fascinations and reached them WHERE THEY WERE. I have a strong
homeschool philosophy that includes teaching to kids' strengths and
fascinations. I have learned that Dr. Temple Grandin, who also
has autism, had that philosphy, too. But I learned that long
after I had been home schooling for years and years.
At our school we employ lots and lots of
DIFFERENT techniques -- unique for each child. The main thing we
do is keep the children -- my twins included -- meanginfully
engaged all the time.
And guess what -- even without all that
expensive ABA -- but by using a combination of interventions such as
PECS and TEACCH and floor time and lots and lots and lots of launguage
rich activities in a language-rich environment and tons of field trips
to places in the community -- my twins with autism are now talking and
interacting.
The boys can now go into a
restaurant without a meltdown. They can go to church and sit
through an entire service without outburts. They can talk --
sure, it's hard to undertand sometimes -- but they talk in
SENTENCES. They know how to order a hamburger at
McDonald's. They sack groceries at the store. They are 10
years old. They know how to pump gas, and know how to get
themselves dressed. They can make a sandwich and pour themselves
a glass of milk. They can tell time. They can do so many
things we were told they would never do. Pie in the sky
inedeed. I have news for these "experts." Heaven is on the
side of these children.
Public schools failed my twins.
That's why I pulled them after 1st grade. (I put them in public
school for preschool, 2 years of kindergarten and 1st grade while I
homeschooled my other three children as they took up ALL of our time
when they were at home). In public school they were NOT kept
MEANINGFULLY engaged at ALL times. Sure, they were engaged all
right -- but not in things that had MEANING to THEM.
I am not the answer to all kids with
autism or other cognitive disabilities. But these kids have the
answers within them somewhere. I believe you start with what they
are fascinated with and you go from there. I believe that with a
LOT of exposure to a LOT of things ALL THE TIME, you will make
progress. It's messy, it's hard, it's embarrassing sometimes, and
it's ugly a lot of the time -- but with persistence and tenacity --
these kids can LEARN!
I have one little 8-year old student
with Cohen Syndrome right now at our cottage school who refuses to say
his sounds to me when we study phonics -- he likes to sing them, his
arm up in the sky. So I let him. I know eventually he will
SAY them! Who cares if he sings them? He sings them and
then he takes a bow. Wow. What a super fun way to learn how
to read, don't you think?
Oh, I could go on and on. I could write a book.
Maybe I will.
And guess what -- my twins with
autism? They'll be able to read it because they are reading now.
How is that for pie in the sky?
Oct. 6, 2005 - Untitled Comment
Out of curiosity, what diet are you using for your autistic children? Our son, Bry, has sensory integration disorder and for 4 years we had him on a gluten/caesin free diet. That worked pretty well and a couple of times a year I'll go back to it for a flush. In the last 6 months or so I've put him back on a standard american diet without the chemicals. Just recently I noticed as long as his diet is balanced with meats and carbs he's just fine. You'd never know it. My friend, who's daughter has PDD, noticed the same thing. With keeping the insulin in control they were "with us". Just a thought.
Blessings,
~Farrah
Jan. 7, 2006 - Untitled Comment