Beginning Our Journey

May. 17, 2008

A visit from our friend Joshua and a few other rambles

Our good friends Kevin and Joshua came over to visit tonight. Kevin's wife Amy was working. I swear Amy we love you too! It seems like the only time they get over here is when she is working! I do not want her to start wondering if we do not like her or something :)

Tristan was taking lots of pictures so I made him sit and snapped one of Joshua with him. Kevin was commenting on my blog and said he wanted to see Joshua on it! So with parents permission here are our handsome boys!



Tristan is 3 of course and Joshua is almost 2! Next month if I am correct. Boy he is growing so fast! The last time Alyssa played with him he was walking but favoring crawling. She was AMAZED that he was walking and talking! She kept coming in and telling me what he was saying and doing.
The kids played really good together. Of course to the dads delight... The two boys went upstairs (I carried him up Amy) and brought down the 2 pink barbie cars and the dump truck and monster truck lost out on what they wanted to play with!) oh my. hee hee

Anyways... So that was our evening. That and gutting a HUGE fish Kevin  brought. I am going to KILL him in the morning when I wake with morning sickness and have to make the kids breakfast. I am going to love the smell of my fridge I am sure. Shuddering just thinking about that!

So Tuesday is clinic day again. Please say a prayer for Tristan. As you might notice in the picture, he is shirtless. Gaining more confidence every day... I have a sinking feeling Tuesday is NOT going to be pretty. A month off is nice for me but Tristan is a different story. It is harder on the kids. So prayers that we glide through it would be GREATLY appreciated.
Nothing exciting happening. Just blood draw and push chemo. No spinals this time.

I am anxious to hear if any of our meds change. I received a letter in the mail from the hospital saying that our study was suspended due to the Dexamethesone causing problems... and to not be surprised if things change. My mother in law (and me really) is thinking nothing will change since we are in maintenance and not on high amounts. But I would LOVE to hear that our amount is being cut back or gone all together. On one hand I would LOVE that. But on the other I want what is BEST. And if it is gone or cut back, I would worry about it not being the best. God knows. So of course we just pray and what he wants us to do, we pray happens.

Tristan has a head of fuzz now. It is so cute! Some lady asked Justin at the video store today if we shaved it with a razor. Um.... Justin said no, he had just finished a heavy chemo round for his leukemia. The lady was like "I do not know what to say to that" lol Justin takes things so to heart. I would have laughed or smiled. It really bothers him. That is ok. It is how he deals with it. To me, I LOVE when people ask about my special man. I do not mind telling people about him and I am PROUD of him. I love to tell them what a strong and mighty kid he is. I feel bad though because it seems like everyone asks Justin.

The other day a little girl came into the store and said "look mommy that kid is bald" Tristan turned to my mom and said "where Grandma?" hee hee. He has no clue! I mean he knows but he has no clue what bald is.

Justin started telling him he was going to mess up his hair and Tristan will take off running squealing no! It is funny.

Oh my, this got long. Sorry! It has been a while. I will not get so winded next time :)
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Comments

May. 17, 2008 - Untitled Comment

Posted by Anonymous
Linda,

After talking to Kevin tonight, I decided to check your blog from work. How cute! Our little guys are so handsome!

Amy
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May. 18, 2008 - Untitled Comment

Posted by loobylou
Lovely photos - they are really cute kids.

Came accross your blog and really enjoyed reading it.

Your family will be in our thoughts and prayers on Tuesday.

x
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May. 18, 2008 - Untitled Comment

Posted by Anonymous
Glad to see you posting again! Tristan is doing awesome! I would LOVE to see his hair coming in and just rubbing his head. How soft! Probably like a baby!

Prayers coming your way for this week!

Carrie
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A place for me to gather thoughts, keep memories and gain sanity as I embark on the homeschooling journey. Also a place to update my friends and family on my son's journey with fighting a.l.l. Leukemia.

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Alyssa(5) and Tristan(3)





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