Family, Computers, and Creativity

Nov. 10, 2005

Irritable Bowel Syndrome, Fibromyalgia, or Celiac?

Posted in Celiac

It seems that right and left I am hearing of people being diagnosed with fibromyalgia and irritable bowel syndrome. Doctors have become familiar with these conditions. What I am wondering is, how many of these people actually have celiac? Celiac was once thought to be extremely rare and doctors where taught that. Thus most doctors do not think to check for the possibility of celiac. When patients arrive that have complaints of tiredness and irritable digestion celiac is not the first, second, or even 50th thing they consider. However, recent studies have confirmed that 1 in 100 to 1 in 133 Americans have this condition. Not rare at all! In fact it is extremely common. That means that there may be as many as 30 moms here on Homeschoolblogger that have it personally and many more will have members in their immediate family with it. That is significant enough that I want to create a category on my blog for it.

 

John (my husband) and Melody (my daughter) have Celiac Disease. This is an autoimmune disease triggered by the ingestion of a grain protein called gluten. Gluten is in wheat and barley grains. The ingestion of gluten causes the body to mount an immune response that damages the brush villi in the small intestine. Brush villi are responsible for absorbtion of nutrients as well as providing digestive enzymes that break down dairy products. Thus the digestive complaints. When the body cannot absorb nutrients a chain reaction of problems and symptoms results: initially tiredness, later an itchy skin condition specific to celiacs, if diagnosis continues to be delayed there may be bone and joint pain, long-term serious complications such as type 1 diabetes and intestinal cancer can result.

 

Fortunately, once diagnosed, it is very treatable. No expensive medicines or invasive treatments needed. All that is needed is a lifelong elimination of gluten containing products. This can seem intimidating at first. John has been on a gluten free diet since 1997 and my daughter has been on a gluten free diet since about 2000. It is second nature now to shop, prepare, and serve gluten free meals.

 

I want to help others who are undiagnosed to consider the possibility that their condition might be celiac and provide a glimpse into what life is like in a family that has two of six members who are celiac. I will post recipees, kitchen helps, shopping tips, what to look for, tests for the condition, and more. To make it easy to track the entries that are specific to celiac, I will add a link in the categories list in the side bar (see the right side of this page). Click on it as you visit my blog in the furure and you will be able to sort out only the celiac posts.

 

If you or someone you know has been diagnosed or you suspect celiac, please post a comment and tell me about it.


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Comments

Nov. 10, 2005 - I have celiac disease...

Posted by ejoyce,ink
and so does my 13 year old daughter. Eleanor
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Nov. 11, 2005 - celiac disease

Posted by TC
My 12yo daughter was diagnosed 10 years ago, and I've been cooking gluten free for her ever since.
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Nov. 11, 2005 - possible Celiac

Posted by heythereheather
Thank you for your celiac information! I'll briefly tell you our story, since you asked :)

My DS2 was born in March 04. I eliminated dairy from my diet when he was 2 weeks old due to allergy responses, soy when he was 4 weeks old, and gluten when he was 3 months old. (which progressed to ever increasing eliminations, he has multiple food allergies). So I have been gluten free myself for 18 months.

When my DS1 was 3, I started realizing that it wasn't normal to have daily stomachaches, 4-5 unformed, undigested, etc stools a day. We pulled gluten from his diet, then (with all of my experience already, it was easy), and saw immediate changes. We were gluten free for 2 weeks, then decided to do testing for celiac disease. He went back on gluten for 3 weeks, though it was kind of a struggle to get him to eat wheat bread, which he used to love. How quickly he associated it with his stomachaches!

Anyway, the testing (antibody testing) was negative. We proceeded gluten free, however, and he has been gluten free for almost a year now. I have suspected a false negative, though he does also have issues with soy, dairy, and tomatoes (so he is free of all of them, as well).

Back to me--I found all of my previously-diagnosed-IBS symptoms completely disappeared when I was on this elimination diet for my baby. Especially after eliminating gluten. So I suspect either a family intolerance to gluten, or perhaps celiac all around. Right now we are gluten free, and that's good enough. Perhaps down the line we'll consider the gene test. Oh, and the 20 month old tests negative to wheat, but he still clearly reacts to gluten. Not with the allergy symptoms like he does to soy, or eggs, say, but with gastro-intestinal issues.
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Nov. 14, 2005 - Untitled Comment

Posted by Galatians69
I believe that I and at least one of my daughters have celiac. I had a negative blood test (I know that is common) and do not show some of the common symptons but the changes in my body after the two short gluten free trials I did were rather amazing. I am finding the transition very difficult. I want to stomp my feet and have a little tantrum all the while hollering "I do not want to be gluten free!!!! I love wheat!" lol I *will* press on and conquer this. :)
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About Me

Hi, I am Tammy and I am homeshool mom to Gregory (20 - now graduated). Melody (18 - now graduated), Timothy (14) and Zachary (7). We all love computers and creativity so it is just natural that it would be a big part of our homeschooling.

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