DustBunniesAndBooks
Dust Bunnies And Books
9 September 2008
Invisible Illness: educating yourself (and the doctor!)

Posted in Medical

One thing I've learned since living with a chronic illness is the need to educate first yourself and second your doctor.  Many of these diseases are rare and doctors are inexperienced with them.  I think most of us would say that we read all we can about our illnesses.  Here are some auto-immune related items that I've found helpful or interesting.



The Autoimmune Epidemic:  Bodies Gone Haywire in a World Out of Balance--and the Cutting-Edge Science that Promises Hope by Donna Jackson Nakazawa.

What Your Doctor May Not Tell You About Autoimmune Disorders:  The Revolutionary, Drug-Free Treatments for Thyroid Disease, Lupus, MS, IBD, Chronic Fatigue, Rheumatoid Arthritis, and other Diseases by Stephen B. Edelson and Deborah Mitchell.

Here is an interesting video, mostly concerning MS and childhood diabetes, that does a great job of explaining how autoimmune diseases (in general) work.  It is 45 minutes in length, but very informative.  He discusses some experimental treatments that really offer some very promising hope.  I recommend those who do not have MS or childhood diabetes to also watch this, as he mentions many other T-cell autoimmune diseases, such as Rheumatoid Arthritis, Crohn's, Ulcerative Colitis, etc.

Have you read an interesting book or found something on the Internet?  Leave a comment.



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Comments

Dust if you must, but there's not much time, with rivers to swim and mountains to climb, music to hear and books to read, friends to cherish and life to lead. ~~~~~~~~~~~~~~~~~~ ~~~~~ Welcome! ~~~~~~ ~~~~~~~~~~~~~~~~~~ I've finally bitten the bullet and set up a blog! I'd like keep better track of what we do. I never seem to get a diary going, so we'll try this! ~~~~~~~~~~~~~~~~~~~ I'm Mom to two beautiful girls, one is 10, the other is 8. We've named our little homeschool in the Appalachian foothills: Anchored in Christ Academy. We use literature-based unit studies from Five in a Row and HomeSchoolShare.com. We have just begun our 6th year of homeschooling. ~~~~~~~~~~~~~~~~~~

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