This Changes Everything

Nov. 13, 2007

Another Chapter

Hi All,

I have been getting steadily dizzier over the past few weeks and I have begin getting headaches that were increasing in severity. The ibuprofen wasn't really working either. While I was at the supermarket two weeks ago I finally became overwhelmed with the dizziness. It was time to go to the hospital. Off we went.

A dose of morphine and a CAT scan later, we were on our way home. I would come back again for an MRI and then again for a consult with the neurologist. They could find no swelling and no bleeding in the ER, which was good. But the symptoms suggested something going on.

The MRI showed no remarkable change in the tumor. But, because it occupies 80% of the space in my brain stem, any small movement will affect my ability to function. The doctors have to go on my symptoms because the MRI doesn't really catch the incredibly fine changes in the tumor. They did say there may be more "flares" coming off the tumor which would indicate a change in the activity level or the grade of the tumor. Meaning, it may not be growing but it may be changing composition and becoming cancerous.

The suggested treament is Temador, chemotherapy. I am currently on steroids to see if that helps my dizziness and headaches. I have up to a month to decide if I want to take this route. I am also drinking lots of carrot juice to support my immune system.

I don't know how I feel right now. Sad? Angry? Frustrated? I am dizzy like when you get off a spinning ride at a carnival, all the time. I've gone from forever buzzed to drunk. My headaches come more often and are more painful than they have been and the ibuprofen doesn't always get it done. I've had to stop drinking sweet tea. Am I whining or what?

I am feeling down and sorry for myself. I know it is just temporary. I don't want to have to think about going blind or losing even more abilities. BUT GOD. He is still in control and I will not be afraid. He will never lead me where His grace cannot keep me. His hand is in this even though I cannot see it right now. Let's watch together and see what miraculous things God will do.

Looking for joy in the storm,

Elyse

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Comments

Nov. 14, 2007 - Untitled Comment

Posted by Robin
So sorry to read this recent news. I am so glad you have posted an update. I have wondered how you are doing. Praying for you and the decisions you have to make about the Tremador. You are in very good hands Elyse~~HIS hands.
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Nov. 16, 2007 - hi

Posted by wendy
hi elyse,

whenever i am looking for inspiration i always check your blog....i am always inspired by your honesty and your faith.
dear, dear elyse. you are always in my heart. i love to click on your blog and send you a mental message of love and hope.
always
wendy
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Nov. 17, 2007 - Praying for you

Posted by Anonymous
Agreeing with what the others wrote, Elyse - you're an inspiration (even in the down moments) and you're in the best hands. Thank you for writing the things you do. Praying for wisdom for you, and for grace in all this.
Love in Him,
Donna-Jean
www.libertyandlily.blogspot.com
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Dec. 1, 2007 - Praying for you!

Posted by Christine
I'm so sorry to hear about your recent increase in headaches and dizziness. I will be praying for you and for the decisions you have to make. You are always in my thoughts and prayers!
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Dec. 3, 2007 - Love, Love, Love You

Posted by Patty
Lisi,

You are wonderful and have never whined in your whole life. Sweet tea IS a loss. Morphine makes you itch after a while so lay off of it! Every sunset is a victory for all of us in Christ. One more day to work for the kingdom. You are my favorite because you are the first...hahahah! See you soon, baby girl. Patty
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Dec. 12, 2007 - Hello

Posted by Anonymous
Hi Elyse-
I'm so sorry that you have been having more headaches and dizziness in the past month....are the steroids working at all or have you decided to go with chemotherapy? Please keep me posted...praying for you, my friend....holding you up in prayer--may He give you grace for each day...
Hugs,
Alisa in NJ
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A companion to our journey in the fight to survive a brain tumor and continue homeschooling our children.

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